I’m going to start by saying this is just my personal opinion based on what I have observed so far. I am a late diagnosed person on account of the fact that myself and my personality were quite developed by the time I got my diagnosis at 17. An early diagnosis I classify as you got it very early on in your life so you’ve always been autistic. There was never a time that you can remember being an undiagnosed autistic.
The reason I decided to make this distinction is that it shapes your personality. There is the debate about whether you are an autistic person or a person with autism. This is more than the simple language debate it would seem. I know a lot of people would think what is the difference but it’s there. It depends how much you think autism is a part of you and your life. Does your autism define you in the way that a footballer is sometimes only thought of a footballer and when they stop playing they have lost their identity? For me my autism is a big part of me as it’s always been present whether recognised or not but it’s not all that I am. I am interested in a great many things in this world. Yes I can be obsessive, literal and single minded but I can also be social, warm and affectionate.
I think my late diagnosis helped me as I learnt the habits that I need to survive. I don’t have the strange eating habits of only eating chicken and chips or other similarly limited diets. I may say inappropriate things occasionally but I’m generally polite. I’m a fairly well rounded person who luckily escaped something much more debilitating like Down’s syndrome or Tourette’s but even here people are making strides towards acceptance. They are being welcomed into the community.
I think an early diagnosis is akin to helping a butterfly out of its chrysalis. You damage it in ways it can’t know until later on. I was hurt by others and by not knowing myself but now I think I’m being reborn like the butterfly and I’m flying free due to having gained the strength from my earlier struggles. One of the things my mother always said to me was “What doesn’t kill you makes you stronger.” I’m not quite sure whether she was joking, being sarcastic or truly meant it as it differed when she said it but it’s true. Also “You catch more flies with honey than with vinegar.” Or “Cry and you cry alone, laugh and the whole world laughs with you.” These were epithets delivered on how to make friends and the mood you should be in to attract other people.
People are what make life more interesting but you have to be in the right place to be able to accept them into your life. If you have more drama and issues stored inside of you than the average soap opera; your not going to be in a fit state to be anybody’s friend. It is up to you to make the most of your life as you only get one. Your not a cat I’m afraid.
Best wishes
Angela
This is very helpful, thank you for your courage to talk openly about autism. However, do scientists know where it comes from? What is the cause of it?
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No scientists are not sure where it comes from or what causes it. Their current best guess is in 25% it’s a single gene but in the rest it’s unknown as there are many genetic factors that are currently unexplored.
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You know what really makes me mad? The fact that medical researches are based on funding that are based on how much profit it can be made of it. So many health issues are forgotten because simply there are no funding. And mental health issues are the most forgotten ones. To me honestly it is a crime…
Sorry if I have harsh words about this. I just can’t stand injustice and money obsession
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It’s not harsh, it’s true. This is what happens with so many things like most of the antiquities in Mexico.
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So true and with oppressed people all over the world. Have a nice Sunday!
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Thankyou I will!
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This is so true for me, an aspie. Reading this article will give so many an insight into our lives
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I’m continuing to increase awareness of what it is like to be a late diagnosed autistic with no access to therapy of any kind whatsoever.
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That is essential, I was diagnosed aged 46, after work issues I did get some help and am part of a support group. Autism was behind many of the issues. How did you find out? I am doing public speaking.
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I had a near fatal car accident at 17. I had support afterwards and when I returned to school. This continued at uni but finished when I graduated. I’ve had none since.
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I’m sorry to hear about the accident. I like patterns between languages, but am doing public speaking but was too often told I could not express myself properly. My confidence has been low at times. I have never written a book so well done
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Thankyou
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I’m from Surrey, UK. Where do you live
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In Kent.
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